Table of Contents

HK J Paediatr (New Series)
Vol 10. No. 1, 2005

HK J Paediatr (New Series) 2005;10:34-43

Occasional Survey

What do the Parents Think?: A Pilot Survey on the Health Service for Children With Down Syndrome in Hong Kong

KL Yam, CB Chow, JTF Lau, CM Yu


Objective: This survey aimed at reflecting the health service for children with Down Syndrome in Hong Kong from the parents' perspective. Method: Ninety-eight questionnaires were collected from families with children aged 0-18 years old during the Annual Meeting of the Hong Kong Down Syndrome Association in 1999. Medical and allied health services, educational provisions, surveillance and assessment programmes were analysed. The utilisation pattern, referral time, follow up frequency and satisfaction ratings were reported. The necessity and accessibility of the services were ranked. Results: Utilisation of various services was reported. Most parents of Down Syndrome were satisfied with the current service provisions. Educational assistance and assessment service were regarded as highly necessary. Services provided by Physiotherapy, Occupational Therapy, Speech Therapy were perceived as necessary but difficult to access. This descriptive pilot study provided important information for consideration by health service providers in Hong Kong.

Keyword : Down Syndrome; Health service

Abstract in Chinese


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